Photo ©Scott Munn, PhotoSensitive. Kids Who Can, PhotoSensitive in partnership with Easter Seals, 2012.
Laura Osbourne dancing with counsellor Mike Moors. Laura, 22, lived the life of a typical teenager until she was 16. Then the tremors in her hands started and she was diagnosed with Metachromatic Leukodystrophy, a progressive and terminal genetic disease affecting her mobility and memory. Laura’s mother, Mary Burtt, gave the counselors a notebook in which to write what Laura got up to – because when she returned home, she would have forgotten it all. Laura’s family does many activities that excite her at the time, but the impact of camp stayed with her for many days. Laura loves music, and her ability to remember lyrics doesn’t seem to have been impacted, Mary says. “I’m sure music will be a part of her life as long as she can get words out of her mouth. Time will come when she can’t speak, but as long as she can speak, there will be music coming out of that little girl.”